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What the Arizona wilderness taught me about my lymphedema
Hello, lymphies! I realize that my last couple postings have been riddled with promises to post more often followed by apologies when they go unfulfilled, and I’m embarrassed for not keeping up like I...
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Big milestone!
I achieved a major milestone the other day: for the first time in years, I bought – and wore – a pair of SHORTS. Shorts! My lymphie leg is my right leg (on the left in the photo). Last week I went on a...
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Another big milestone, lymphies…
Yesterday, I did something I’ve been gearing up to do for a while: I wore a dress with my compression garment! And I have the photos to prove it, too: I’ve been hoping to do this for a while although...
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“Facing a ticking clock”
Hello, lymphies! It’s been a while, and I apologize (once again) for my inconsistencies in posting. I know I’ve been doing that a lot lately, but life has been hectic and with so much going on, the...
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Exciting new project!
I have some very cool news to share with you all: Over the next couple of months I will be working on a manuscript for a children’s book about lymphedema. I’m hoping to have it available for...
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Daring to Bare
Yesterday, I posted a photo to the Lymphie Life Facebook page of my bare ankles—a very big deal, as fellow lymphies can attest to—and the supportive feedback I received was overwhelming. You all are...
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Time for a Tune-up
Last Friday was my first appointment with a lymphedema doctor in almost three years. Yup, you read that right—three years. The visit was more than a little overdue to say the least, but only because I...
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Sometimes, more is more
This morning’s appointment was really good, although it wasn’t quite what I had expected. For this appointment, I was seen by a different doctor than last week. The new doctor (we’ll call her Dr. B)...
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That’s a wrap!
March 27th marked the end of my month-long wrapping treatment, and I’m SO happy! I wasn’t sure if it would be completed on time—it was all contingent on whether or not my new garments would arrive...
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End-of-Summer Wrap Up
The summer is almost over, ahhh! I’m not mad about it—I much prefer the cooler months, which I find to be a lot easier on my lymphie leg both physically and fashion-wise (pants and leggings 4ever)....
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Lessons from a lunar eclipse
Photo by The National Guard on Flickr. Last night featured a rare celestial event: a lunar eclipse coincided with a supermoon, which is a full moon that appears larger because it’s at the closest point...
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Today: take time to pause and ask yourself this one question!
Last week a stranger asked me a thought-provoking question. I was sitting alone, mindlessly scrolling through my phone, when a young man got my attention: “If you could define your life in one word,...
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The importance of practicing gratitude
Last week was Thanksgiving here in the United States, which is one of my favorite holidays—not just for the delicious food or the quality time spent with family and friends, but for the focus on...
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New Year’s Resolutions for Lymphies
Some of my 2016 resolutions. Happy New Year! It’s hard to believe we’re already in the first few days of 2016—so exciting!! I love the new year because it’s such a restorative time, a perfect...
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Walking in a Winter Wonderland
My cat wasn’t too sure what to make of all the snow! The East Coast was hit with a blizzard this weekend, and here in Baltimore we ended up with a record-breaking snowfall of over two feet. What...
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Checking in and catching up
My desk, AKA where I spend about 94% of my waking hours! Oh, man… I feel like I’ve been running on fumes. Usually I try to strike a balance between my responsibilities and my self-care but I’ve been...
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Recap: Lymphedema Lobby Days 2016
Photo by Julie F. Hanson, for the Lymphedema Treatment Act. Last week I attended the Lymphedema Lobby Days, where I joined more than seventy patient advocates from across the country for an amazing,...
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Chronic Positivity: Choosing to stay positive in the face of a chronic health...
When living with a chronic health condition like lymphedema, “staying positive” is somewhat of a weighted phrase: some days it’s an empowering and buoying sentiment, but other days it can feel like an...
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NLN International Conference 2016: A Peek Behind the Curtain of Lymphatic...
As patients, we’re not always privy to what’s going on in the world of lymphatic research. The information’s out there, but it’s not always super accessible to most of us—if you don’t know where to...
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2016 Walk to Fight Lymphedema and Lymphatic Diseases: Bridging the gap...
Check out all those blue shirts for lymphedema and lymphatic awareness! The Brooklyn Bridge was peppered with bright shocks of blue on Saturday, September 17th, as crowds of people in blue shirts...
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